tag:blogger.com,1999:blog-3212792066513941222024-03-13T03:03:35.772-07:00Prayers for Mason...Life is Difficult. This is a great truth, one of the greatest truths. Once we truly know that life is difficult--once we truly understand and accept it--then life is no longer difficult. Because once it is accepted, the fact that life is difficult no longer matters."Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.comBlogger182125tag:blogger.com,1999:blog-321279206651394122.post-79386596303914312832014-07-27T13:52:00.001-07:002014-07-27T13:52:16.432-07:00We're still alive!Here is a little run down of what we have been doing!<br />
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(yes Im a bad blogger! but life is BUSY BUSY)<br />
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Working hard to keep Mason healthy </div>
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Logan turned 1</div>
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Mason is the 2014 Heart Child !!!!</div>
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We attended the Heart Gala and enjoyed a wonderful night celebrating Mason.</div>
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He painted the painting pictured below, it sold for $3200</div>
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He was the star that evening and everyone loved on him!</div>
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The boys have been busy growing up and playing</div>
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Mason loves to read</div>
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The boys have done LOTS of swimming this summer</div>
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Found out Mason LOVES the boat</div>
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Cheesy Smiles ( he knocked out at tooth )</div>
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These boys love thier walks</div>
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Mason and Colby are best friends</div>
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So that is our life in a nut shell!</div>
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Busy but blessed</div>
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We are gearing up for the 2014 Heart Walk September 27th!</div>
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We will be doing some fundraisers for our teem</div>
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Check in to see how You can Help!</div>
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<br />Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com0tag:blogger.com,1999:blog-321279206651394122.post-12504286963691265092014-01-05T11:09:00.001-08:002014-01-05T11:24:59.338-08:00Our year in review! Our Blessed 2013<div class="separator" style="clear: both; text-align: center;">
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<span style="font-size: large;"><u><i><b>Our 2013 in review </b></i></u></span></div>
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<span style="font-size: large;"><u><i><b>JANUARY </b></i></u></span></div>
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My Sweet Mason </div>
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Sleeping angel </div>
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22 weeks pregnant </div>
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Brothers playing </div>
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Zoo Trip</div>
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<span style="font-size: large;"><u><i><b>FEBRUARY </b></i></u></span></div>
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<div style="text-align: center;">
Colby Dale</div>
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Sweet boys</div>
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We celebrated Valentines Day</div>
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<span style="font-size: large;"><u><i><b>MARCH</b></i></u></span></div>
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Mason and Momma</div>
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Mr. Attitude</div>
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Favorite place to play</div>
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St. Patrick's Day Parade (always cold!)</div>
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Mason underwent a 24 PH study to help figure out his aspiration/ reflux issues going on </div>
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The boys colored Easter Eggs</div>
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Good Friday ( Mason was actually born on Good Friday)</div>
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Easter Sunday</div>
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<span style="font-size: large;"><u><i><b>APRIL</b></i></u></span></div>
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Mason Turns 2 Yrs old</div>
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4 days later </div>
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Logan Drew entered the world (3wk early)</div>
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Logan had trouble breathing at birth and was sent directly to the nicu</div>
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Colby got to meet his "wittle brother"</div>
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First time mommy got to hold him</div>
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4 days old</div>
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<span style="font-size: large;"><u><i><b>MAY</b></i></u></span></div>
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Logan still in the NICU</div>
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Mothers day</div>
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Colby Turns 4</div>
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and momma spent most of the day with Logan in the NICU</div>
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I turned 29...and spent that in the NICU as well</div>
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We juggled life with 2 little boys at home, one in the nicu, and a hubby who had to go back to work...</div>
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">After 30 days in the nicu, our sweet Logan Drew is finally home</span></span><br />
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Home!!! <br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><u><i><b>JUNE </b></i></u></span></span></span><span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"></span><br />
<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"></span></span><span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><u><i><b> </b></i></u></span></span></span><br />
<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">We settled into life with 3 little boys!</span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">Lots of family walks</span></span><br />
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Nursing this lil babe</div>
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<span style="font-size: large;"><u><i><b>JULY</b></i></u></span></div>
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">Happy and Bald</span></span><br />
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Logan with Great Grandma Bobbie after church<br />
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Logan and Mommy</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD-uA0T9M331KXwwDTcm8a-kz0fxt1vaZSfordDN4y4k5snFlWpJQ2BixMauuA1Ew0SIkt_EBu6yHOzwSTmpEoEiki-z-S50gtM6PZU-ZzwVfhH3dCRTAjMng97Dw1HKVKSzhIKDYs-iQ/s1600/941258_10200872950560868_737541480_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD-uA0T9M331KXwwDTcm8a-kz0fxt1vaZSfordDN4y4k5snFlWpJQ2BixMauuA1Ew0SIkt_EBu6yHOzwSTmpEoEiki-z-S50gtM6PZU-ZzwVfhH3dCRTAjMng97Dw1HKVKSzhIKDYs-iQ/s320/941258_10200872950560868_737541480_n.jpg" width="320" /></a></div>
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">Mason enjoying one of our many walks</span></span><br />
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and bath time<br />
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<span style="font-size: large;"><u><i><b>AUGUST </b></i></u></span><br />
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Logan grew<br />
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Great grandparents celebrated 55 years <br />
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The kids played in the pool<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitpvKxgybzVXGlxqHZ9gvgxscFFZqP_yTJU0Apb0STaORwh96_-dHJ0Dv1b4Zx8bn3rAub3kSgSDHOAs6-zu-xB2sRbSgV7ozOKdoJOGQnmzO28LPHj6Yesz3keCxJbo_64bXaSJkjB6M/s1600/1185503_538951686154351_1030663897_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitpvKxgybzVXGlxqHZ9gvgxscFFZqP_yTJU0Apb0STaORwh96_-dHJ0Dv1b4Zx8bn3rAub3kSgSDHOAs6-zu-xB2sRbSgV7ozOKdoJOGQnmzO28LPHj6Yesz3keCxJbo_64bXaSJkjB6M/s320/1185503_538951686154351_1030663897_n.jpg" width="320" /></a></div>
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><u><i><b>SEPTEMBER</b></i></u></span></span></span><span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"></span></span><span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><u><span style="font-size: small;">Lots more playing outside </span><i><b> </b></i></u></span></span></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgpWpcvZl7grwWvfPb5sekrlY82caBXSs2_BQMeb_xmXX4UPWQtEc7pZdZ1jyDgUyU7f3XPiAZsv5db7MTJeGcFqVEnYXAcaLj3VysG6Sq25XynE7A2Zo2UlYaNLsVPP6uehBr5MqZXSE/s1600/1240491_10201184965961058_1494395327_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgpWpcvZl7grwWvfPb5sekrlY82caBXSs2_BQMeb_xmXX4UPWQtEc7pZdZ1jyDgUyU7f3XPiAZsv5db7MTJeGcFqVEnYXAcaLj3VysG6Sq25XynE7A2Zo2UlYaNLsVPP6uehBr5MqZXSE/s320/1240491_10201184965961058_1494395327_n.jpg" width="320" /></a></div>
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">Logan turned 5months old</span></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgi58sR8EBkRSi9YW6vQutiY5wG8eS-geI_4i9Q9Pl-0GGDD6xEqGdRuuRtAHH72Bv6lnMI7QYm8Yj3qSEw00MlCm54oKxnjr10_pLWVyO_SL_pFTqfYQQ_QcYqLG2VgufC_ownZAssXJY/s1600/1238776_10201245932005171_928637581_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgi58sR8EBkRSi9YW6vQutiY5wG8eS-geI_4i9Q9Pl-0GGDD6xEqGdRuuRtAHH72Bv6lnMI7QYm8Yj3qSEw00MlCm54oKxnjr10_pLWVyO_SL_pFTqfYQQ_QcYqLG2VgufC_ownZAssXJY/s320/1238776_10201245932005171_928637581_n.jpg" width="320" /></a></div>
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">brothers posed for pics..</span></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbfa4E7aFxFfhmz8hcpFL8Gk0vLCT54nH2kUKzqq3AOUYDMeJPwvrxEFkk3FC_Rqui5fy5I01Z1k2M_XxFTXt1tyQfilT1WX6Je6oY0Y36lbh_zIkOfFLSmQ5m-5ZrvkLaT08K2CL0ync/s1600/560542_10201249842822939_1118059414_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbfa4E7aFxFfhmz8hcpFL8Gk0vLCT54nH2kUKzqq3AOUYDMeJPwvrxEFkk3FC_Rqui5fy5I01Z1k2M_XxFTXt1tyQfilT1WX6Je6oY0Y36lbh_zIkOfFLSmQ5m-5ZrvkLaT08K2CL0ync/s320/560542_10201249842822939_1118059414_n.jpg" width="320" /></a></div>
<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">and went for walks</span></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge3YrDrWmLqL9b0-htZHkWYeZu6_W7WBljnoY7mWzOpomx4UW8ZLuOVRjBCtmqf1bgCDiWyf7oZx0AwMeIFMjxUIw1u_xcb2vQycEm6CRvso8QPDq4i-HrrsrMjVzWmmDrhJBDnNUkf4A/s1600/561396_10201299981036363_1158967993_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge3YrDrWmLqL9b0-htZHkWYeZu6_W7WBljnoY7mWzOpomx4UW8ZLuOVRjBCtmqf1bgCDiWyf7oZx0AwMeIFMjxUIw1u_xcb2vQycEm6CRvso8QPDq4i-HrrsrMjVzWmmDrhJBDnNUkf4A/s320/561396_10201299981036363_1158967993_n.jpg" width="320" /></a></div>
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">Mason celebrated his 2 year Open Heart Surgery Anniversay</span></span><br />
<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">can you believe that was 2 years ago!</span></span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiVw1-8DTh0foJCuhzQsWgyw5l9QHECkGlabSdqTJ5VTK6whAfUmye5aGsBzbW0I-DTeVOhPKTwt3-mfTtzWmJMZqdy7XKlStyOYwUmJDxZ4ontijmnWzbn0n3UmNP6bgth1Q7Y-gv7EPk/s1600/1238943_10201315751950626_1035966570_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiVw1-8DTh0foJCuhzQsWgyw5l9QHECkGlabSdqTJ5VTK6whAfUmye5aGsBzbW0I-DTeVOhPKTwt3-mfTtzWmJMZqdy7XKlStyOYwUmJDxZ4ontijmnWzbn0n3UmNP6bgth1Q7Y-gv7EPk/s320/1238943_10201315751950626_1035966570_n.jpg" width="255" /></a><span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"> </span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><u><i><b>OCTOBER </b></i></u></span></span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">Mason and Logan in matching pjs</span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">Mason fell in love with a dancing mummy (thanks aunt jenny!)</span></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjXZvTnDXtHm-WUGhqEe9Ub_AfpF0Zp9v1Z9PhDO4FNOvyhXa9bjUL63IZoYVg03ra-II_zyC4rrSNIQuSMghDfTJpF9qrdXBd4sHqjtyq62B81fRZ0D_7QP6P9w41cqoH1vdTbFd-c5E/s1600/1393612_10201455066113393_324639132_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjXZvTnDXtHm-WUGhqEe9Ub_AfpF0Zp9v1Z9PhDO4FNOvyhXa9bjUL63IZoYVg03ra-II_zyC4rrSNIQuSMghDfTJpF9qrdXBd4sHqjtyq62B81fRZ0D_7QP6P9w41cqoH1vdTbFd-c5E/s320/1393612_10201455066113393_324639132_n.jpg" width="320" /></a></div>
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">Logan turned 6months old</span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">We took a Family Vacation , Where Colby rode his first roller coaster</span></span><br />
<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">that he LOVED</span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"> and ended with Mason going to the Hospital Via Ambulance for breathing difficulties..</span></span><br />
<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">He ended up having croup.</span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"> Then all the kids were sick for halloween , so no one dressed up..</span></span><br />
<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">but we did get a pic of Mason as a pirate!</span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><u><i><b>NOVEMBER</b></i></u></span></span></span></div>
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Logan turned 7 months old.<br />
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started really trying to crawl<br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption">and eating like a little piggy!</span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><u><i><b>December</b></i></u></span></span></span><span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><u><i><b> </b></i></u></span></span></span><span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><u><i><b> </b></i></u></span></span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: large;"><span style="font-size: small;">We did elf on the shelf with Colby</span></span></span></span><br />
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Logan had lots of baths<br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: small;">The boys played on the iPad</span></span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: small;">All 3 boys had Dr appointments</span></span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: small;">Then we celebrated a very very blessed Christmas and New years!</span></span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: small;">We again were blessed with another year, a year full on memories and thankfulness.</span></span></span><br />
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<span class="fbPhotosPhotoCaption" data-ft="{"type":45,"tn":"*G"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-size: small;">Cant wait to see what this year brings!!!</span></span></span><br />
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Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com29tag:blogger.com,1999:blog-321279206651394122.post-13555039656131717872013-09-17T11:52:00.001-07:002013-09-17T11:52:39.513-07:00Who is ready to " STEP UP FOR DOWN SYNDROME" ?????<span class="userContent" data-ft="{"tn":"K"}">Who is ready to " STEP UP FOR DOWN SYNDROME" ?????<br /> <br /> We are gathering donations towards our team for our sweet Mason Dean ! <br /> There are several ways you can help!<br /> <br /> 1. You can simply make a monetary donation.<br /> 2. You can shop at any of the following online parties, where proceeds go towards our team funds.<br /> <br /> We have several parties to choose from!</span><br />
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<span class="userContent" data-ft="{"tn":"K"}"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][1]"></span><span data-ft="{"tn":"K"}" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[0]">For Origami Owl Orders _ </span><a class="" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[1]" href="http://www.kenziescreations.origamiowl.com/" rel="nofollow" target="_blank">www.kenziescreations.origamiowl.com</a><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[2]"> select the walk for Mason Down syndrome fundraiser from the party tab at checkout</span></span></span></span><br />
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<span class="userContent" data-ft="{"tn":"K"}"><span data-ft="{"tn":"K"}" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[2]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897706}.[0].{right}.[0].{left}.[0].[0].[0][1]"> </span><span data-ft="{"tn":"K"}" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897706}.[0].{right}.[0].{left}.[0].[0].[0][2]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897706}.[0].{right}.[0].{left}.[0].[0].[0][2].[0]"><a class="profileLink" data-hovercard="/ajax/hovercard/hovercard.php?id=154116938121366&extragetparams=%7B%22hc_location%22%3A%22ufi%22%7D" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897706}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[0]" href="https://www.facebook.com/DanelFlourish" id="js_192" target="_blank">Flourish with Danel Wolcott</a><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897706}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[1]">
Orders- momsflourish.net/dwolcott " Please contact me by email of
what you want to order, and I will send you an invoice to pay from. My
email is danel@tvnav.com"</span></span></span></span></span></span></span><br />
<br />
<span class="userContent" data-ft="{"tn":"K"}"><span data-ft="{"tn":"K"}" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[2]"><span data-ft="{"tn":"K"}" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897706}.[0].{right}.[0].{left}.[0].[0].[0][2]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897706}.[0].{right}.[0].{left}.[0].[0].[0][2].[0]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897706}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[1]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897721}.[0].{right}.[0].{left}.[0].[0].[0][1]"></span><span data-ft="{"tn":"K"}" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897721}.[0].{right}.[0].{left}.[0].[0].[0][2]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897721}.[0].{right}.[0].{left}.[0].[0].[0][2].[0]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897721}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[0]">Pampered Chef Orders - </span><a class="" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897721}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[1]" href="http://www.pamperedchef.biz/pamelahunt" rel="nofollow" target="_blank">www.pamperedchef.biz/pamelahunt</a><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897721}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[2]"> Then the click on shop online. Enter either Down's syndrome or Pamela hunt</span></span></span> </span></span></span> </span></span></span></span><br />
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<span class="userContent" data-ft="{"tn":"K"}"><span data-ft="{"tn":"K"}" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[2]">direct donations - <a href="http://www.stepupfordownsyndromekc.org/fr/FDFDS/2013StepUp/MissionMason">http://www.stepupfordownsyndromekc.org/fr/FDFDS/2013StepUp/MissionMason</a></span></span></span></span><br />
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<br />
<span class="userContent" data-ft="{"tn":"K"}"><span data-ft="{"tn":"K"}" data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0]"><span data-reactid=".r[10v2v].[1][4][1]{comment10201278844187955_5897690}.[0].{right}.[0].{left}.[0].[0].[0][2].[0].[2]">THANK YOU!!!!!!!!!!!!!!!!!!!! </span></span></span> </span>Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com0tag:blogger.com,1999:blog-321279206651394122.post-45822169463959240822013-09-01T16:21:00.001-07:002013-09-01T16:21:58.877-07:00What Down syndrome at 2 years is like for us<p dir=ltr>Like with any child , the 1st year to the second has huge changes!</p>
<p dir=ltr>Masons second year has had huge changes for him as well!  Hes growing by leeps and bounds!  </p>
<p dir=ltr>Mason has conquered walking<br>
Mastered running <br>
And can climb just about anything he can get his leg up on.... add in the super flexibility. .ahe can climb a lot!</p>
<p dir=ltr>It seems that Mason has blown  his therapist away with his great gross motor skills.  He surprises them all with how soon he walked (for a child with ds)  <br>
And now how effortlessly he runs and climbs. </p>
<p dir=ltr>We laugh when new people on his therapy team come and are like " whoA!!"  (Yup! Proud momma)  </p>
<p dir=ltr>But as with saying with children with down syndrome. ."they are either walkers or talker"  it couldn't be any more true!!! </p>
<p dir=ltr>Yes, Mason says a few words and does signs... but compared to other kids with DS who are not walking/running... he is  far less vocal then they are! (We got a walker not a talker )</p>
<p dir=ltr>So we met with Masons team of therapists,  we turned our focus from gross motor to fine motor and our main focus ...SPEECH.  </p>
<p dir=ltr>This momma wants to give him the best chance at communication !! I want him to be able to express himself  as easily as possible. </p>
<p dir=ltr>So were bringing in our speech therapist every week and we follow her suggestions till we reevaluate each week with new plans and goals. </p>
<p dir=ltr>Nothing will hurt a mothers heart as watching your child be behind while others thrive.  </p>
<p dir=ltr>We get so excited to see mason doing super awesome and surpassing his goals on the down syndrome chart. ... but then you throw him in the mix of typical learning peers.... and I can see where he is behind.  Some days I have to hold back the tears.  To see how many words the peers his age have, makes it seem like mason is so far behind them.  </p>
<p dir=ltr>But around here we keep it as positive as possible!   So instead of crying,  this momma is pushing Mason... pushing him to learn as much as possible.   So if we have to do more therapy , we will. If I have to get more fluent in sign language,  I will.  If it means I need to set aside daily therapy time, consider it done!  </p>
<p dir=ltr>I will not sit back and do nothing ( because we haven't yet) and we will continue giving mason all the opportunities as we can !</p>
<p dir=ltr>So, to finish up ...</p>
<p dir=ltr>Besides a few setbacks in speech. .. mason acts like a typical 2 year old.</p>
<p dir=ltr>So we see where we need to improve and we will continue to make progress!</p>
<p dir=ltr>Slowly but surely is the motto this year! !!<br></p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSctxma63uPSKMn2I3Ja5AH0LlLIz8QB38ziGstGKrsL0KztLtYGvm-kH0-mYWiqhwsu-Fc7PeHv0BfY5Oh57NnXp9f2LxT39tKm1bHBfDipjiOdD_TDR2-zMpRaQ75MBtn8vP3bgP2L8/s1600/IMG_20130828_152219.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSctxma63uPSKMn2I3Ja5AH0LlLIz8QB38ziGstGKrsL0KztLtYGvm-kH0-mYWiqhwsu-Fc7PeHv0BfY5Oh57NnXp9f2LxT39tKm1bHBfDipjiOdD_TDR2-zMpRaQ75MBtn8vP3bgP2L8/s640/IMG_20130828_152219.jpg"> </a> </div><div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTsMrdYEdygxeMzB99o3E4Sds6Mr4Z4IHsr3ct2aA4iZCkNT33hQDnL5LE_QglSqz3nTxUOcKzV_QiTsJ3cpbXIZzw_YIOSYtYPohF6poWhOKy4wVRt_Ng7nv77qe6MjJXpRYwtXRiE7k/s1600/IMG_20130828_152610.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTsMrdYEdygxeMzB99o3E4Sds6Mr4Z4IHsr3ct2aA4iZCkNT33hQDnL5LE_QglSqz3nTxUOcKzV_QiTsJ3cpbXIZzw_YIOSYtYPohF6poWhOKy4wVRt_Ng7nv77qe6MjJXpRYwtXRiE7k/s640/IMG_20130828_152610.jpg"> </a> </div>Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com1tag:blogger.com,1999:blog-321279206651394122.post-57781828829195303402013-08-31T13:41:00.001-07:002013-08-31T13:56:35.554-07:00Where have we been?????WHERE HAVE WE BEEN?????<br />
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Our last post was in March!<br />
<br />
Well we have been a tiny bit busy with this one...<br />
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<br />
Logan Drew made his appearance a month early on April 26th at 12:16am<br />
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He spent 30 days in the NICU due to premature lungs <br />
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We celebrated Mothers day in the hospital..<br />
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FINALLY we got to take him home!<br /><div class="separator" style="clear: both; text-align: center;">
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Mason and Colby are adjusting to the new baby... </div>
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but really it hasnt bothered either of them!</div>
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They love him </div>
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Now here are some Mason pics to make up for the delay in updates!! </div>
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<br />Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com1tag:blogger.com,1999:blog-321279206651394122.post-39837871953759943602013-03-21T12:08:00.004-07:002013-03-21T12:08:55.034-07:00World Down Syndrome Day<div class="separator" style="clear: both; text-align: center;">
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Today, as you may know is World Down Syndrome Awareness Day.</div>
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Today is a day that we celebrate, embrace, and acknowledge those who were born with Trisomy 21. </div>
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Years ago , I had never even really heard of WDSD, let alone ever think I would be a parent celebrating my child with Down Syndrome.</div>
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But I am.</div>
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And I am happy to celebrate him, honestly I think he deserves it. </div>
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He deserves to be recognized as someone who is just like everyone else. Someone who should have the same amount of love, compassion, and patience showed towards him as any other child would have. </div>
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I am a blessed to be his mother.</div>
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I am not special, super human, or a saint....</div>
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I'm just a mom , who grew the child that we made. </div>
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Nothing magical, nothing amazing.</div>
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Just a mom who loves her son.</div>
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Sup?<br />
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Not impressed, Mom...<br />
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My little ham<br />
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Sweet face<br />
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Mason and Mommy<br />
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Playing peek a boo</div>
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Instagram ( mrsbandherboys)</div>
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Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com1tag:blogger.com,1999:blog-321279206651394122.post-48594993369504976772013-02-21T10:36:00.000-08:002013-02-21T10:36:36.501-08:00What were using .....I get emails about what we are using for Mason's developmental progress. So I decided to do a post about what we are using!<br />
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For Fine Motor skills we play with lots of blocks:<br />
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These are the main 2 kinds we have.<br />
<a href="http://www.amazon.com/Melissa-Doug-100-Piece-Wood-Blocks/dp/B000068CKY/ref=sr_1_1?s=toys-and-games&ie=UTF8&qid=1359475755&sr=1-1&keywords=blocks">Wood Blocks</a><br />
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<a href="http://www.amazon.com/Melissa-Doug-Deluxe-50-piece-Wooden/dp/B000067NXE/ref=sr_1_6?s=toys-and-games&ie=UTF8&qid=1359475851&sr=1-6&keywords=blocks" target="_blank">Alphabet Blocks</a></div>
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<a href="http://www.amazon.com/Fisher-Price-Brilliant-Basics-Babys-Blocks/dp/B0089W1IGG/ref=sr_1_10?s=toys-and-games&ie=UTF8&qid=1359475982&sr=1-10&keywords=blocks">Shape Sorting Blocks </a></div>
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He got the <a href="http://www.amazon.com/gp/product/B004UU9W78/ref=oh_details_o04_s00_i02?ie=UTF8&psc=1"><span style="font-weight: normal;"><span id="btAsinTitle" style="display: inline;">Fisher-Price Laugh & Learn Apptivity Case</span></span></a></div>
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He enjoys playing with the apps and watching the screen.</div>
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We mostly use this for Dr. appts ( to keep him busy)</div>
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He has really enjoyed his <a href="http://www.amazon.com/gp/product/B001R5VNYY/ref=oh_details_o06_s00_i00?ie=UTF8&psc=1">Earlyears lil Shopper Play set</a></div>
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<img alt="Earlyears Lil Shopper Play Set" border="0" class="prod_image_selector" height="300" id="prodImage" src="http://ecx.images-amazon.com/images/I/51PRoVSvdzL._SL500_AA300_.jpg" style="cursor: pointer;" width="300" /></div>
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He enjoys taking the "groceries" out of the bag, and each item does "something". </div>
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The milk carton opens and has a mirror, apple has a rattle, banana peels (and has a krinkle noise), Orange opens and has a rattle, and lettuce has krinkle noise.</div>
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He has really enjoyed this set ( I keep the milk, banana, and orange in the diaper bag for quite play during church)</div>
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Great Grandma got him the<a href="http://www.amazon.com/gp/product/B007QS9FJQ/ref=oh_details_o06_s00_i01?ie=UTF8&psc=1"> Kidooie Peek N Peep eggs</a></div>
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I cant find a pic , but these are another toy that Mason LOVES</div>
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Its a great fine motor toy. He enjoys taking the tops off the eggs, opening the carton, and trying to put the tops back on.</div>
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This toy will also grow with his development. The eggs have a shape on the bottom and only fit in a certain spot. So later he can work on fitting the shapes in , colors, and matching the faces with the eggs. (Colby plays with this toy as well at almost 4yrs old and he enjoys it!! </div>
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<a href="http://www.amazon.com/gp/product/B001R674GE/ref=oh_details_o03_s00_i00?ie=UTF8&psc=1">Melissa & Doug Magnetic Hide and seek farm</a></div>
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Pretty simple to explain... He loves opening the doors and moving the magnetic animals around.</div>
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We also got several Leap frog toys for Christmas that Mason really likes to play with as well:<br />
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<a href="http://www.amazon.com/gp/product/B00804BCLY/ref=oh_details_o06_s00_i03?ie=UTF8&psc=1"><span id="btAsinTitle">AlphaZoo Spinner</span></a></h4>
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He likes the music and pushing the big yellow button to make it spin<br />
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Next I will post on the things we are using to work on sign language with Mason.<br />
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Have a Great Day!!<br />
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Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com2tag:blogger.com,1999:blog-321279206651394122.post-22542290830666913312013-02-08T08:03:00.002-08:002013-02-08T08:03:24.549-08:00Congenital Heart Defect Awareness WeekAs many of you know, Mason was born with a Congenital Heart Defect. He was born with Atrial Ventricle Spetal Complete, and under developed heart valves. <br />
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Mason being born with a CHD makes him 1 in 100..... Why 1 in 100? <br />
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<span style="color: red;">*<strong>Congenital heart defects are America’s and every country’s #1 birth defect. Nearly one of every 100 babies is born with a CHD</strong></span><br />
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After finding out about Mason's heart condition, we knew he would need open heart surgery to save his life. If we hadn't found out before he was born<strong> </strong>that he would need extra medical attention, Things could have taken a turn for the worse. We are thankful to our Drs , that we all knew what was going on with his heart, and knew what needed to be done to save his life.<br />
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<span style="color: red;"><b>*Congenital heart defects are the leading cause of all infant deaths in the United States</b></span><br />
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<span style="color: red;"><b> </b><span style="color: black;">When we found out about Mason's CHD at the same time we found out he would have Down syndrome. The CHD he has is actually common in children with DS. That was one of the leading factors (before our amnio) that pointed towards him having Down syndrome. </span></span><br />
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<span style="color: red;"><b>*Almost half all children and adults with complex congenital heart disease have neurological and developmental disabilities</b></span><br />
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<span style="color: red;"><span style="color: black;">Now here comes the shocking facts of Congenital Heart Defects:</span></span><br />
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<span style="color: red;"><b>* </b><b>Each year approximately 40,000 babies are born in the United States with
a congenital heart defect. Thousands of them will not reach their first
birthday and thousands more die before they reach adulthood<span style="color: black;">. </span></b><span style="color: black;"><span style="color: black;"> </span></span></span><br />
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<span style="color: red;">*<span style="color: black;"><span style="color: black;"><span style="color: red;"><strong>More than 50% of all children born with congenital heart defect will require at least one invasive surgery in their lifetime</strong></span> </span></span></span><br />
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<span style="color: red;"><span style="color: black;"><span style="color: black;"> ( Mason is lucky to have been able to have his heart repaired at 5mo old, after being in heart failure at 5wks old. If he had not had his surgery, he would not be alive today. He life depended on that 8 hr surgery. ( longest day of our lives). He will have echocardiograms, EKGs, and Cardiologist visits for the rest of his life. He heart may need another surgery when he is older ( were looking at around 12 or 15 yrs old ). </span></span></span><br />
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<span style="color: red;"><b>*</b><span style="color: black;"><span style="color: black;"><span style="color: red;"><b>There are more than 40 different types of congenital heart defects.
Little is known about the cause of most of them. There is no known
prevention or cure for any of them</b></span> </span></span></span><br />
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<span style="color: red;"><span style="color: black;"><span style="color: black;">We do know that Masons type of heart defect goes hand in hand with him having Down syndrome, but they do not know the actual cause of his heart not fully developing. </span></span></span><br />
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<span style="color: red;"><b>* In the United States, twice as many children die from congenital heart
defects each year than from all forms of childhood cancer combined, yet
funding for pediatric cancer research is five times higher than funding
for CHD. </b></span><br />
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<span style="color: red;"><span style="color: black;">As a Mother of a child with CHD, I often wonder why there isnt more funding, research, awareness, and public knowledge of CHD. We knew nothing about CHDs, untill we were told that Mason had a heart defect. Now we are making it our goal it educate as many as we can about CHD..... because the more people know, the more lives we can save.</span></span><br />
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Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com4tag:blogger.com,1999:blog-321279206651394122.post-66329680923151971442013-02-05T13:58:00.000-08:002013-02-05T13:58:25.606-08:00A baby after a child with Down SyndromeAs many of you may know , We are expecting a little baby boy in May.<br />
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When we got the surprise that we were expecting again, We were a bit shocked to say the least. We had talked about possibly having a 3rd. That maybe a younger sibling would be good for both boys. But when we got the positive pregnancy test..... I was a bit freaked out.<br />
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We found out at our 20 wk ultrasound that Mason had cystic hygroma, a congenital defect (we were told most likely Down syndrome), and a heart defect. <br />
Our world as we knew it was shattered.<br />
We were told he would not survive.<br />
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We started planning a memorial service for him ( I remember calling funeral homes asking how they do a memorial/ burial service for a baby...Thinking of this still makes me cry). We let our family know what we wanted done , so when the time came, we wouldnt have to think of what to do. <br />
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For the following 14wks after that day , we waited. I had 3-5 appts a week. All to monitor how he was surviving. All we could do was sit , wait , and pray that he would pull through. Finally we started getting better news (always small bits). We finally got to start planning his nursery and not planning a funeral. <br />
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I went through so much emotionally during his pregnancy, that once he was born, I did not want anymore kids. NOT because Mason has Down syndrome, but because the pregnancy itself ( cystic hygroma, heart defect, pre term labor, premeture birth, ect) was just so hard. Over and over I kept telling Cory, no more... I just cant do it again. <br />
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The first year of Masons life was a whirlwind. We had heart failure, Open heart surgery, therapies, dairy allergies, ect.... You name it, we went through it! Also through that first year, my heart took a beating. I had to deal with the emotions of my child having to endure all these things, while others just seemed to skip through life without a care. They had babies who didnt need life saving surgeries, or therapy to learn to sit, or be on medication for the rest of their lives. <br />
And looking back now, my heart was bitter. It felt unfair at times, that we had to fight to get him here... while others just continued on with their perfect life. <br />
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I really think it took a good year for my heart to heal. <br />
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Finally once my heart had healed, I actually started listening to my husbands requests..<br />
He wanted another child.<br />
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His reasons for having another one were good, but I wasnt convinced yet. <br />
He said it would be good for Mason to have a younger sibling to help push him. That It would be goo for our whole family.<br />
In my heart I knew he was right... but I was still so traumatized by Masons pregnancy that I just didn't want to do it again.<br />
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After a few more months, lots of praying, and lots of long talks, I felt like we might EVENTUALLY be ready to try again....<br />
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well God had other plans in mind.... We got a big surprise In September! Im pretty sure God took it into his own hands ( because I may never of been 100% ready). <br />
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With the excitement came a whole new set of fears....<br />
Would this baby have a heart defect? Cystic hygroma? Down syndrome?<br />
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We knew that if we were to have another there were risks....<br />
We have a 1% chance of the baby having Down syndrome, Cystic hygroma, or a heart defect. We have that 1% because we have a child with those conditions. So there is a chance it could all happen again.<br />
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Now the Down syndrome isnt was was scarring us, it was the heart defect and CH. Those were the big things that threatened Mason's life in utero. ( We know that down syndrome is not a curse, and that if we did have another with DS, we would be just fine!)<br />
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So I pretty much held my breath this whole pregnancy.<br />
Never getting fully attached, always wondering if this would happen again.<br />
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Well last Wednesday we had our " big ultrasound". In the same room we had Mason's ( where we learned all that was going on with him) I was so worried going in, trying to brace myself for bad news. The tech (HI Jen!) who did Mason's sono did this one as well. I felt like I was right back in the same place and time. My nerves were on edge as we began. Jen asked how the pregnancy was going, how mason was doing. ( I think she could tell I was really nervous) As she started, the screen fill with a beautiful pic of our sweet baby... and I smiled. I knew right then, no matter what the outcome was, all would be ok. As I am watching the screen, she starts scaning the heart. There in front of my eyes is a perfect 4 chamber heart, beating with a perfect beat. Thats when the tears started, I couldnt help myself. That tiny heart was one of the biggest worries I had, and to see it , beating perfectly... words cant describe. The rest of the sonogram went smoothly and Jen pointed out everything as she went along. And when she was done, she said the baby looked perfect.<br />
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Those words brought some sort of comfort ( no heart surgery, no lifetime medications) but not excitement. We did not cheer that this baby wouldn't have Down syndrome, but we were simply relieved to have a healthy baby ( no heart surgeries!)<br />
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So while we feel blessed that this baby seems as healthy as can be, you wont find us celebrating that he doesnt have down syndrome... Why , you ask?... because we know its a blessing , not a curse.Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com12tag:blogger.com,1999:blog-321279206651394122.post-59975304438845667762013-01-05T10:16:00.001-08:002013-01-05T10:16:56.177-08:00Picture Post Update<div class="separator" style="clear: both; text-align: center;">
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We have been busy ( I think I keep saying that on every post) but its my goal this year to be a better blogger! We will see how long that last!<br />
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Here is what we have been up to:<br />
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Mason is allergic to Dairy ( As in everything that has milk, whey, or dairy protein in it) So we have to be very careful in what we give him to eat. I mostly eat dairy free with him. I leave out dairy in our meals when i can ( Colby and Cory are not always fond of that ) But we have found a few "sweets" he can enjoy that are safe for him to eat!<br />
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Almond Bark covered pretzels <br />
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And oreos.... </div>
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Both are very messy but we let him have them every once in a while ( right before bath time).<br />
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I was looking through old pics on my phone and did this comparison... What a change in just 1 year! <br />
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Christmas brought lots of new toys and I was pretty adamant on what was on Mason's list. I didnt want toys that wouldnt benefit him. I wanted things that would encourage the skills we are working on ( Fine motor). So I was kinda strict on my list...but I think it will pay off in the end. Plus our play room isnt cluttered by 303049308984 toys that light up and make noise! (PS the "cube" in the first pic was the best present for Mason! He is doing so good working his fine motor skills on it ) <br />
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He loves books<br />
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(This is actually Colbys toy from Aunt Jenny but Mason loves to ride while Colby pushes him)<br />
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His peep peep eggs were a BIG HIT!!<br />
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Colby enjoyed the holidays as well! He got a big boy bike this year! </div>
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I leave you with a few pics of what our days have been looking like...<br />
Houston we have a CLIMBER!<br />
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And then the next min he is sleeping like an angel ...<br />
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<br />Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com0tag:blogger.com,1999:blog-321279206651394122.post-64313861562227344882012-11-27T11:12:00.000-08:002012-11-27T11:12:10.627-08:00Prayers are neededA childhood friend of mine, is in labor at the moment....<br />
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They found out 2 weeks ago , at their last sonogram before delivery, that their baby boy has <a href="http://hunterandashlyssupermanchristian.blogspot.com/2012/11/what-is-hypoplastic-left-heart-syndrome.html" target="_blank">Hypoplastic Left Heart Syndrome</a> . They did not know up until then that he had this congenital heart defect.<br />
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Here is her blog post of the day they found out. (reading this is like going back in time for me, to when we were fighting for Mason's life....and how scary it is to know their heart is not complete)<br />
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<span style="font-size: small;"><i><b><span style="color: #351c75;">Hunter and I had been told we were having a healthy baby boy. All of
our test had come back negative and the body scan we had at 20 weeks
came back normal. We were so excited to go to our last ultrasound
November 12, 2012, to see how much our little man was weighing and
determine when he could potentially make his debut. He was weighing in
at a whooping 6 lbs. 15 oz., they were able to show us a 4D of our
handsome little man. The nurse explained to us that Christian was not
cooperating and she was not able to see the parts of the heart she
needed to and that she was going to get her colleague that was a genius
in getting the difficult heart pictures. Hunter and I became nervous
when the other nurse came in and was very quiet during the whole time
she was scanning Christian. She said she would go get the doctor and
left. Our world came crashing down when the doctor came in with a
genetics specialist. They explained that Christian's heart was not
normal, but they were unsure of what exactly what was wrong and could
only guess by what they were seeing. We were devastated. Why was this
happening to us? What did I do to cause this? How did they miss it in
the other ultrasounds? We just could not understand. They set up an
appointment the next morning with a Pediatrics Cardiologist to do a
fetal echocardiogram up in Wilmington, DE at a children's hospital, A.
I. Dupont. Needless to say Hunter and I barely slept that night. I
prayed the doctor's were wrong and that they had just misread my
ultrasound and my baby boy was healthy. <br /><br />
The next morning our worst fears were confirmed. Our son in fact did
have a Congenital Heart Defect, Hypoplastic Left Heart Syndrome. I was
numb when the doctor was trying to explain to me what all this meant and
what the next actions would be for Christian. I was stuck in this
awful nightmare and I could not wake up. I had so much anger built up
towards other women I felt did not deserve the healthy baby they had
been given when I was left here with a baby with a broken heart and I
had done everything right. The cardiothoratic surgeon that would be
performing Christian's surgery met with us to introduce himself and
reassure us. The rest of the day was kind of a blur of tears and
emotions. Hunter and I did research and contacted other families that
had been through the same thing. I was able to talk through email to a
sweet Christian woman that has a daughter with Hypoplastic Right Heart
Syndrome. Her story and faith helped me wake up today with a more
positive attitude about our situation. </span>
<span style="color: #351c75;"><br /><br />
Hunter and I know that this is going to be a very long and hard road
ahead for our family. We know it is going to challenge us as
individuals, parents, and even as spouses. We know that through all
this it will help us grow stronger in our marriage, as parents, and in
our faith. We may not understand God's plan when giving us this
"hiccup" in our life, but we trust it is for a greater purpose because
we know His plan is perfect. We have a wonderful support system through
our families, friends, and military family. We ask for prayer and
encouragement through this. We know there are going to be rough days,
but we also know that God is bigger than this problem and He will never
leave us nor forsake us. We know He will be guiding the surgeon's hands
on our little Superman's heart because he is the ultimate physician.
Our son is going to be so special and be such a testimony to others.</span>
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<span style="font-size: small;"><span style="color: #351c75;"><span style="color: black;"><span style="font-size: small;">Baby Christian will need open heart surgery very soon after birth, then 2 more befo<span style="font-size: small;">re the age of 3. <span style="font-size: small;">They have a long road ahea<span style="font-size: small;">d, but they know that God has chose them to <span style="font-size: small;">be his parents for a reason ( though<span style="font-size: small;"> sometimes it doesnt seem fair) <span style="font-size: small;">Ashly's and Hunter's faith will guide them<span style="font-size: small;">, and<span style="font-size: small;"> they will <span style="font-size: small;">see in the end , how truly <span style="font-size: small;"><span style="font-size: small;">blessed</span> they are. </span></span></span></span></span></span></span></span></span></span></span></span></span></span><br />
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<span style="font-size: small;"><span style="color: #351c75;"><span style="color: black;"><span style="font-size: small;">So we <span style="font-size: small;">ask that you lift Ash<span style="font-size: small;">ly, Hun<span style="font-size: small;">ter, and Baby Christian u<span style="font-size: small;">p in your prayers as they pro<span style="font-size: small;">c<span style="font-size: small;">ed <span style="font-size: small;">on <span style="font-size: small;">this journe<span style="font-size: small;">y<span style="font-size: small;">. W<span style="font-size: small;">e ask that you continu<span style="font-size: small;">e to wrap <span style="font-size: small;">your arms around them as they prepare their son <span style="font-size: small;">for open heart sur<span style="font-size: small;">gery. Please <span style="font-size: small;">guide a<span style="font-size: small;">nd protect the<span style="font-size: small;">m during this <span style="font-size: small;">t<span style="font-size: small;">ime Lord<span style="font-size: small;">. </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><br />
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<span style="font-size: small;"><span style="color: #351c75;"><span style="color: black;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"> For updates on baby Chri<span style="font-size: small;">stian</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><br />
<span style="font-size: small;"><span style="color: #351c75;"><span style="color: black;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;">Please follow Ashly<span style="font-size: small;">'s blog <a href="http://hunterandashlyssupermanchristian.blogspot.com/">http://hunterandashlyssupermanchristian.blogspot.com/</a></span> </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><br />
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Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com2tag:blogger.com,1999:blog-321279206651394122.post-26410131503729317692012-11-26T13:44:00.001-08:002012-11-26T13:44:42.452-08:00Photo Dump (aka an update ) and the BIG GOLD WALKERWell....<br />
Once again I have neglected the blog...<br />
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I will blame this on 1st trimester tiredness! But now that we are smooth sailing in the 2nd tri with this baby.... I will try harder to update more than once a month!<br />
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Here is a recap of what we been up too.....<br />
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Well this little guy is getting bigger by the day! He is eating a ton of table foods now ( dairy free due to his allergy). And falling asleep at lunch is becoming a regular occurrence these days!<br />
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Mason is set to have his eye ( rescheduled 3 times now due to no PICU bed available) But until then...I will continue to stare at those beautiful sparkly eyes!</div>
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Colby has been such a great big brother! This kid LOVES his brother. His favorite thing right now is helping him walk. He is also doing great at his "at home preschool". We have workbooks, crafts, and activities that we have Colby do. He really loves learning!<br />
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Mason is quite the helper around the house as well...<br />
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Now lets move on to Mason's big news....</div>
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We are WALKING!!!</div>
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He can now walk half way across the living room with no stumbles! He walks more than he crawls now too! He always has a big smile on when hes doing it too. </div>
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We were given a walker by Mason's physical therapist. She wanted to see if it would help put him in a better position while walking. ( Mason loves to use a traditional "push toy walker" but his posture and positioning while using it isn't ideal, since he would lean too far forward.) So his PT suggested that we try a walker ( the big gold colored walker) to see if we could get him in the right position....and guess what... it did!<br />
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We will continue to work with Mason on getting him all the tools he needs to accomplish all his goals.... Im pretty sure we own every kind of " helpful equiptment" that he could use right now! (Hip helpers, Spio suite, Spio pants, inserts for his shoes, a "support chair" and a walker...just to name a few!)<br />
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So i will leave you with a pic...untill our next post! Mason just being silly!<br />
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<br />Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com2tag:blogger.com,1999:blog-321279206651394122.post-6609131216361767992012-11-06T13:41:00.001-08:002012-11-06T13:41:39.713-08:00We been a bit busy!So I have neglected the blog once again.... SORRY!!!<br />
<br />Let me fill you in on what has been happening in our lives!<br />
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We are so happy to announce that we are expecting baby # 3 in May 2013 !! Baby is growing and has a strong heartbeat! We feel so blessed to be adding to our family once again!<br />
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Then we went on vacation! <br />
Florida Key for 10 days.... It was heaven<br />
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Then when we came home we got ready for Halloween!</div>
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Macy painted his pumpkin...and himself... </div>
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Then it was time for costumes!<br />
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Macy was a Chicken... and Colby was a farmer!<br />
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Thats all I have for now....better update in a few days!!Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com4tag:blogger.com,1999:blog-321279206651394122.post-70862380170365993422012-09-21T13:44:00.000-07:002012-09-21T13:44:38.958-07:00Its been 1 year...Tomorrow will be Mason's 1 year " New Hear" anniversary.<br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgR6iDj1VmXSwCuOSrNLPyVWV3VbWNkLKznzBE1ooTj9Ui7_jZKAq2XkRg8L-PSZ7WvE7gv1G5pFXZ72XDnHYf9CylINwajgs6FpFxmdUA0a42PJ_z6e0hmZehjVnsHezqWpuHR6_DOeKs/s1600/207831_4073580232682_837330216_n.jpg" style="margin-left: 1em; margin-right: 1em;"> <img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgR6iDj1VmXSwCuOSrNLPyVWV3VbWNkLKznzBE1ooTj9Ui7_jZKAq2XkRg8L-PSZ7WvE7gv1G5pFXZ72XDnHYf9CylINwajgs6FpFxmdUA0a42PJ_z6e0hmZehjVnsHezqWpuHR6_DOeKs/s320/207831_4073580232682_837330216_n.jpg" width="320" /></a><br />
1 yr since we had to place our tiny baby into the arms of the Dr.s who were going to save his life.<br />
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1 yr since we clung to every update the nurse gave us ( praying that every update meant he was doing ok)<br />
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1 yr since we waited 8+ hours to see him after surgery.<br />
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1 yr since my sweet baby's heart was fixed.<br />
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Echo before surgery</div>
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Pre - Battle Scar pics </div>
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To think back on that day ( or see the photos) is still very "raw". Yes, we are a year post-opt. Yes, he is doing well now...... but that day, I handed over my baby, not knowing if he would come back to us. To have to put all your trust into a Dr. who you have only met for 20 min, its hard. Everything was so un certain. There were no guarantees that everything would be ok. All we could do was hand him over, and pray. <br />
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And boy did we pray! <br />
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All prepped - waiting to hand him over </div>
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Our whole family and friends were there to help us through that day. We very much needed them there. Words can never express how important they were to us that day. Always keeping our spirits up, helping distract us when possible. We all were praying for the same thing that day, praying for our Mason. <br />
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After we got the WONDERFUL news that Mason had made it through surgery, we finally got to go back and see him for the first time....<br />
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I had this lump in my through before walking back to see him..... I was so happy to see him, but I was trying to brace myself for what I was about to see......<br />
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(Warning! Graphic pics below)<br />
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First time we got to see him</div>
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Med towers</div>
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morning after</div>
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opened his eyes for the first time( late 2nd day)</div>
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All together we were in the hospital for 18 days.<br />
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Cory was able to stay with me the first 8 days, but the last 10 I had to do by myself. It was the hardest thing I have done. To be away from my husband, my son. while sitting beside Mason, fighting to recover. <br />
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Finally getting to hold him!</div>
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We went into Mason's surgery thinking we would be heading home in 5 days... We were there 18. Mason had just about every complication in the book......but you would never know it today. </div>
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He is strong, and is such a fighter! </div>
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So Mommy & Daddy say:</div>
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Happy New Heart Day </div>
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Love you so much!</div>
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<br />Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com3tag:blogger.com,1999:blog-321279206651394122.post-69250135177975384972012-09-16T18:41:00.001-07:002012-09-16T19:33:05.669-07:00Long dayThis past Wednesday was a very busy and very LONG day for Cory, Mason , and I. The 3 of us spent almost ALL day at Childrens Mercy Hospital. Mason had a full day of specialist appointments.<br />
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We arrived promptly at 745 am to check in at the down syndrome clinic inside CMH. This is always an appointment I enjoy actually. I know that might sound odd to some....<br />
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First off :<br />
The down syndrome clinic is staffed with an amazing bunch of specialist, nurses, and techs who all specialize in children with DS. <br />
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2nd :<br />
All of the patients that are seen at DS clinic have that extra special chromosome. That means that we sit in a waiting room with children who are all just like Macy. No comparing mason to " typical" children while waiting to be seen. <br />
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There is something special about that waiting room , and the parents that are waiting .... There are knowing smiles and head nods ... Because we are all on a journey we never expected but the journey isn't as hard as we thought We are all there, being proactive for our children. I sit in a room with most children sporting their " battle wounds" ( open heart surgery scars), wear glasses, or wearing shoe inserts. Things that are normal now ..... Are things that get stares in " typical waiting rooms". And we don't get odd stares , because everyone in that room has something similar. It's a good feeling of being around " our own". <br />
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It's just a good overall feeling , one that very few will ever understand.... And I'm ok with that. <br />
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So , this is how our DS clinic appt goes :<br />
Sit in a room while 7-9 specialist rotate through your room in a 5 hour span. .....<br />
Add in a 16 mo old who wants to cruise around or crawl ( anything but sit on your lap) to the equation .. Makes for a long time trapped in a room! But keeping with his amazingness , Mason did great. <br />
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We saw a audiologist , speech therapist , occupational therapist , dietician, physiologist , pediatrician , and social worker. Mason got a great check up from everyone and was even a over achiever in almost all categories !<br />
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After his clean bill of health we rushed over to the endocrinology clinic to see the dr about Masons thyroid. Mason was being seen because his thyroid levels are higher than they should be :(. So after some talking and looking over his blood work results , we decided to do another round of labs then go from there before we start meds. <br />
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After we finished at the endocrin office , we high tailed it to children's mercy south for his ophthalmologist appt and lab work. <br />
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We saw his new ophthalmologist ( very very nice) we found out mason will need surgery for an eye correction on the 27th of sept. **mason tilts his head back to focus his eyes... To repair this he will have surgery to detach his eye from the muscles , then adjust, then re attach to the eye**. Surgery will last about 1-1.5 hours and mason will most likely stay overnight. <br />
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After setting up his surgery date we headed down to labs to get his blood draw .... Long story short... 1.5 hrs later and a momma **this** close to punching a nurse... We left with no labs done. <br />
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So after spending 8am-430pm ... We finally got to head home ... In rush hour traffic. <br />
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We were so tired from such a long day , that ALL of us slept in the next morning! <br />
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We will be leaving at around 6 am to make our way toward children's mercy hospital. Our first stop ( besides breakfast ) will be the down syndrome clinic. The down syndrome clinic is a several hour appointment to say the least. We basically sit in one room for several hours while different specialist rotate through your room ..... I'm talking like 8-10 specialist!! It gets overwhelming at times. The last time we were there was in oct of last year. ( shortly after masons open heart surgery. It was easy then because mason pretty much just slept and ate at that age ..... Well now mason is a mover and shaker! He is into everything! He wants down to run around and walk.... So 4 hrs of trying to contain a toddler ..... Please pray for us ;)<br />
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After the down syndrome clinic we will go to the endocrinologist , to see what we can do for Masons thyroid issues. ( his thyroid is elevated :(<br />
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THEN....<br />
We drive 30 min south to another appointment. This one is the optamologist to see about mason having eye surgery to correct 3 different issues going on... More on that later ....<br />
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Then finally we will load up and head back home . Mommy is just hoping for good news all around ... But I have a feeling were looking at at least 3 surgeries ......<br />
Any prayer would be greatly appreciated. <br />
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Ps <br />
This child is doing great with self feeding ..... If you can't tell!!!<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbUkl4XwkTMctx40WToLRQKZeaLOECwo7IFgU69-heF5Uiiapun32meCVkrIRrvMe1AlyhH3-tgm2OTbG0UyxrVq459DwJQjqV-EmgOxhIwG6AIM3q_TKjtbZhDbky9JWZt8-1MZUY11w/s640/blogger-image-1535227488.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbUkl4XwkTMctx40WToLRQKZeaLOECwo7IFgU69-heF5Uiiapun32meCVkrIRrvMe1AlyhH3-tgm2OTbG0UyxrVq459DwJQjqV-EmgOxhIwG6AIM3q_TKjtbZhDbky9JWZt8-1MZUY11w/s640/blogger-image-1535227488.jpg" /></a></div>Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com1tag:blogger.com,1999:blog-321279206651394122.post-45070184092380839922012-09-11T21:36:00.001-07:002012-09-11T21:36:50.016-07:00Painting fun!!Just a few pics of Mason having fun painting !!<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmdvHIM1-So09UFhUvLhDyY3rr9JCGCUqI77Ew7Xbxsn5e500RgSur-ITnen62Y_rsvkdtCn8gzit9mAL22VARkg0ZDV15MtNgOBP7_eU-OjvsmdrEKnvsG67aqZGlXjmkr6UKMbVB_9o/s640/blogger-image-1105554233.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmdvHIM1-So09UFhUvLhDyY3rr9JCGCUqI77Ew7Xbxsn5e500RgSur-ITnen62Y_rsvkdtCn8gzit9mAL22VARkg0ZDV15MtNgOBP7_eU-OjvsmdrEKnvsG67aqZGlXjmkr6UKMbVB_9o/s640/blogger-image-1105554233.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5WeR5y15otwtqlsFZHD5isEKixm7uYsZFhsJ96QHC_APGLwXCOY3Rz-MM7QaYS4l5LPJhPG-tFZWOw8M_g4W3xFHfBSbF062NUCAHZ0fpJJ96qFM-IRvPCuI-lJ05H7Rh6gLjYl-r63E/s640/blogger-image-2122270903.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5WeR5y15otwtqlsFZHD5isEKixm7uYsZFhsJ96QHC_APGLwXCOY3Rz-MM7QaYS4l5LPJhPG-tFZWOw8M_g4W3xFHfBSbF062NUCAHZ0fpJJ96qFM-IRvPCuI-lJ05H7Rh6gLjYl-r63E/s640/blogger-image-2122270903.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjneOvGrE5SyZ_vn65jg4ee2LIaKpcJIgJ7HnSOmqMw22-aX0148nmbVxO7Ek-ihBygeU7ZPMqbqB2JHkfH4a_v-38H7hfM1sIDDVMHrW1f_9lR6-DSmVjiZQVErGra4pMM5RCpCA-kNuU/s640/blogger-image-1558167026.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjneOvGrE5SyZ_vn65jg4ee2LIaKpcJIgJ7HnSOmqMw22-aX0148nmbVxO7Ek-ihBygeU7ZPMqbqB2JHkfH4a_v-38H7hfM1sIDDVMHrW1f_9lR6-DSmVjiZQVErGra4pMM5RCpCA-kNuU/s640/blogger-image-1558167026.jpg" /></a></div>Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com1tag:blogger.com,1999:blog-321279206651394122.post-33538165366348493562012-08-28T13:07:00.000-07:002012-08-28T13:59:34.602-07:00Not what I had planned for our weekend.....<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUoo6kIisUuNM9hsN6F-y_75-tKpImc0Jp54qQR1gIMV3NM_rKipYZSWvPyvkBojUJAo0JhFzY5Y0w4L0FU1ZU1lV-K3ZLtHf6-iprmOhN9tuKgO93Xy3viCGl0Pq1R7sNTZSfmkDkkKs/s1600/photo(51).JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUoo6kIisUuNM9hsN6F-y_75-tKpImc0Jp54qQR1gIMV3NM_rKipYZSWvPyvkBojUJAo0JhFzY5Y0w4L0FU1ZU1lV-K3ZLtHf6-iprmOhN9tuKgO93Xy3viCGl0Pq1R7sNTZSfmkDkkKs/s320/photo(51).JPG" width="320" /></a></div> Soooooo......<br />
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Had plans for this past weekend. <br />
Simple plans, but I had them!<br />
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This is not what I had in mind:<br />
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Sick baby<br />
Aspiration<br />
Several Dr calls in the middle of the night<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghDAgMFP5f46JBFMEDigSaagwjnkfvYm7RR9TSipZtreHltcfmTHA9ONsE-oX8vwbPUOVGwnPWS4GI691n7Ix1tKxomKIbTiweZ52ysPT_s5XLwKYK0Ruma58JVPmZmHB8wNVr8QHfrgU/s1600/photo(50).JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghDAgMFP5f46JBFMEDigSaagwjnkfvYm7RR9TSipZtreHltcfmTHA9ONsE-oX8vwbPUOVGwnPWS4GI691n7Ix1tKxomKIbTiweZ52ysPT_s5XLwKYK0Ruma58JVPmZmHB8wNVr8QHfrgU/s320/photo(50).JPG" width="320" /></a></div> ER visit for a chest xray turned into a 2 day stay in the Hospital!<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmcquBpjDTrIWiTWUiV_l0O8zaBAJehYipQfZatuvcAJF81F7LtY3WpOU3EnoirY_ofRtXmzyELmh6WYqgKIZUWR0yqedD7gDfnK63lFQIZbLxASXScbuC2YYtkSdkPMXrURCwgjAftEI/s1600/photo(49).JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmcquBpjDTrIWiTWUiV_l0O8zaBAJehYipQfZatuvcAJF81F7LtY3WpOU3EnoirY_ofRtXmzyELmh6WYqgKIZUWR0yqedD7gDfnK63lFQIZbLxASXScbuC2YYtkSdkPMXrURCwgjAftEI/s320/photo(49).JPG" width="320" /></a></div> He had aspirated on his vomit , due to the "virus" he had<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgFhKpm9l_9Ki37de_7uAtAKmnNw303s5mfzSLnsP1g_TV-pj4mPliKFdN5ul51QSwInmhK49FfqrhENTMnlhRaWmB-sFMhuaAY2irJBJLMGz1wUFsJy55ie2rmwrRFBwdVi5MnFJ6Vrw/s1600/photo(48).JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgFhKpm9l_9Ki37de_7uAtAKmnNw303s5mfzSLnsP1g_TV-pj4mPliKFdN5ul51QSwInmhK49FfqrhENTMnlhRaWmB-sFMhuaAY2irJBJLMGz1wUFsJy55ie2rmwrRFBwdVi5MnFJ6Vrw/s320/photo(48).JPG" width="320" /></a></div> Then the chest xray showed "Hazy lungs" and given his heart condition... we got to stay...<br />
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Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com5tag:blogger.com,1999:blog-321279206651394122.post-8854264956052279022012-08-22T11:54:00.000-07:002012-08-22T11:54:08.285-07:00Family day at the FarmWe had a family fun day since Cory took some time off work. We went to <a href="http://www.opkansas.org/Things-to-See-And-Do/Deanna-Rose-Childrens-Farmstead" target="_blank">Deanna Rose Family Farm</a> last week. We had a blast!!<br />
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I think Colby had the most fun of all <br />
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But Mason had a great time as well!<br />
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Colby's favorite part was the pedal tractor track<br />
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oh, and he loved the goats...and they loved him too ;)<br />
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<br />Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com1tag:blogger.com,1999:blog-321279206651394122.post-91687742394817517842012-08-22T11:40:00.002-07:002012-08-22T11:40:34.956-07:00Standing and StepsMason is my fighter.....<br />
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This kid amazes me everyday. For things that come naturally to other kids, he has to work HARD to do. For example: Standing....<br />
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Most kids just simply stand. end of story. It doesn't require Physical therapy x2 a week , Spio suit, sturdy shoes, and ankle braces.... It just comes naturally. But with Mason, we work for every little accomplishment. We work throughout the day (everyday) to help him keep up with the other kids as much as possible...... but these other kids, dont have down syndrome. None of them went through open heart surgery. So we work harder. We try everything that could help him along ( spio suit , ankle braces, extra therapy) We educate ourselves in physical & occupational therapy at home (<a href="http://www.amazon.com/Gross-Motor-Skills-Children-Syndrome/dp/0933149816/ref=pd_sim_b_1" target="_blank"> gross motor skills for children with Down syndrome</a> & <a href="http://www.amazon.com/Fine-Motor-Skills-Children-Syndrome/dp/1890627674/ref=sr_1_1?s=books&ie=UTF8&qid=1345659724&sr=1-1&keywords=fine+motor+skills+for+children+with+down+syndrome" target="_blank">Fine motor skills for children with Down syndrome</a> are GREAT BOOKS) We do all we can to keep him "chuggin along". And you know what... He is doing AWESOME!!!!! Yes, he is a bit behind the "normal curve", but he pretty much lost all his strength after his heart surgery. So at 5mo old.... we started all over. <br />
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So when Mason stands up in the middle of the room all by himself, we celebrate (BIG TIME). Because if you think about it.... We were told he would never make it to birth, let alone stand/ walk/ run! So I look at his beautiful face and just beam with Pride, because he is doing great. <br />
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We just got his ankle braces this morning... we will update on those later! <br />
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PS<br />
isn't his smile just awesome!! Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com2tag:blogger.com,1999:blog-321279206651394122.post-33768861135297900962012-08-07T17:39:00.001-07:002012-08-07T17:39:23.395-07:00Tape, Spio, orthotics, OH MY!!!!<br />
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In the world of "special needs " there are a few things we are learning:<br />
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Kinesio Tape<br />
Compression garmets<br />
HipHelpers<br />
Orthotics<br />
Just to name a few......<br />
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There seems to be a bit of debate over using Kinesio Tape for core muscles in children with down syndrome. Im not going to debate over what is right or wrong.... Im just going to tell our experience.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixN5Ib1DedW0jx1jAP5VJi61Jsrq8BDZtO8_Ck4LFI2R1bpXR1LYVpbkEthBjId2SGMU5oPpKppmxsKKb-f69snhYSjur7Df8t-JF1Ow6Mt1Oi17LFdHaQvT1G6Psu3widVKCeHMHbVaU/s1600/603564_3927884470379_1114437889_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixN5Ib1DedW0jx1jAP5VJi61Jsrq8BDZtO8_Ck4LFI2R1bpXR1LYVpbkEthBjId2SGMU5oPpKppmxsKKb-f69snhYSjur7Df8t-JF1Ow6Mt1Oi17LFdHaQvT1G6Psu3widVKCeHMHbVaU/s320/603564_3927884470379_1114437889_n.jpg" width="320" /></a>Our Physical therapist with TARC , said that she doesnt like to use Kinesio tape because if its not placed in the correct areas / correct way it can do more harm than good.<br />
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But here is the info I found on Kinesio Tape for children <a href="http://jendawnscowgirlup.blogspot.com/2011/10/31-for-21-day-20-kicking-it-olympic.html" target="_blank">(Cowgirl Up HI JEN!)</a><br />
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<div class="MsoNormal" style="background: white; line-height: normal; margin-bottom: .0001pt; margin-bottom: 0in; text-align: justify;">
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<b><span style="color: black; font-family: Arial, sans-serif; font-size: 10pt;">Kinesio Taping is great for kids because:</span></b><span style="color: black; font-family: 'Times New Roman', serif; font-size: 13.5pt;"></span></div>
<ul style="margin-top: 0in;" type="disc">
<li class="MsoNormal" style="background: white; color: black; line-height: normal; margin-bottom: .0001pt; margin-bottom: 0in; margin-right: 24.0pt; mso-list: l2 level1 lfo1; tab-stops: list .5in; text-align: justify;"><span style="font-family: Arial, sans-serif; font-size: 10pt;">It
encourages the body’s muscles to complete multiple, correct repetitions of
a desired movement over time. </span><span style="font-family: Arial, sans-serif; font-size: 12pt;"></span></li>
<li class="MsoNormal" style="background: white; color: black; line-height: normal; margin-bottom: .0001pt; margin-bottom: 0in; margin-right: 24.0pt; mso-list: l2 level1 lfo1; tab-stops: list .5in; text-align: justify;"><span style="font-family: Arial, sans-serif; font-size: 10pt;">Anywhere
your child’s therapist would put their hands to encourage or assist a
certain movement, the therapist can apply the tape to guide the body in
the correct movement. </span></li>
<li class="MsoNormal" style="background: white; color: black; line-height: normal; margin-bottom: .0001pt; margin-bottom: 0in; margin-right: 24.0pt; mso-list: l2 level1 lfo1; tab-stops: list .5in; text-align: justify;"><span style="font-family: Arial, sans-serif; font-size: 10pt;">Your
child will complete hundreds of correct repetitions, rather than
practicing incorrect movements. </span><span style="font-family: Arial, sans-serif; font-size: 12pt;"></span></li>
<li class="MsoNormal" style="background: white; color: black; line-height: normal; margin-bottom: .0001pt; margin-bottom: 0in; margin-right: 24.0pt; mso-list: l2 level1 lfo1; tab-stops: list .5in; text-align: justify;"><span style="font-family: Arial, sans-serif; font-size: 10pt;">Does
not make the body do a certain movement, it makes the body want to do each
movement correctly.</span></li>
</ul>
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We may try it still....... Actually we probably will. We like to try just about everything we can that might benefit Mr. Mason. <br />
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<i>look at that weight shifting </i></div>
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Since our PT wasnt big on the Kinesio Tape, We got a <a href="http://www.spioworks.com/" target="_blank">Spio Vest</a> instead. <br />
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<div style="text-align: center;">
<i>Happy to wear his Spio vest</i></div>
Here is what we have found on it:<br />
<br />
<br />
The SPIO vest is ideal for children with poor core muscle activation, stabilization, <br />
or weakness <br />
<ul>
<li>Provides shoulder-trunk-hip stability and mid-line orientation
</li>
<li>Increases body awareness</li>
</ul>
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<div style="text-align: center;">
<i>It adjust in the back (velcro) so he gets the perfect fit</i></div>
<div style="text-align: center;">
<i> </i></div>
So.....Its pretty <i>Similar (im going to use that term loosely ) </i> to the tape.<br />
<br />
<br />
Both would help Mason become more aware and in control of his core muscles.<br />
<br />
<br />
So for right now were just doing the Spio Vest.<br />
<br />
Mason actually doesnt mind it. He can wear it all day, and its easy (and quick!!!) to put on and take off.<br />
<br />
The things I have noticed the most is :<br />
<ul>
<li>He stands for longer periods of time.</li>
<li>He is more balanced while standing.</li>
<li>He stands/sits up straighter.</li>
<li>He seem more "in control" of his movements as well.</li>
</ul>
<br />
I think this is a great tool to use in getting us closer to independent walking.<br />
<br />
Also, Mason has his new ankle braces on order....more on that later!<br />
<br />
<span id="goog_715027082"></span><span id="goog_715027083"></span><br />
<br />
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<br />Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com3tag:blogger.com,1999:blog-321279206651394122.post-35703812213898179012012-07-21T20:59:00.000-07:002012-07-21T21:03:58.630-07:00Because, nothing goes as planned....Mason is home and is recovering from surgery pretty well now.<br />
<br />
We hit a few bumps along the way....<br />
<br />
<br />
Mason's pre op took longer than normal ( since he has such an extensive health history). But he was an angel the whole time, even falling asleep before they took him back.<br />
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He was sent to the pediatric Intensive Care Unit after surgery to be monitored...... and it was a good thing he was. Mason had a bit of trouble maintaining his breathing and required oxygen on and off through the night. He was also fighting a fever as well.<br />
<br />
We were released on Thursday afternoon , but Macy still wasnt feeling well. We ended back at the ER yesterday afternoon due to high fever and lack of drinking/eating. After several hours we got to go home and Im happy to FINALLY report that Mason is feeling better....<br />
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So thank you for all the prayers that we have been showered with.... The support is amazingMrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com3tag:blogger.com,1999:blog-321279206651394122.post-55045194601130135162012-07-16T15:28:00.001-07:002012-07-16T15:28:50.846-07:00Surgery is a ....GO!Sorry to all our followers......<br />
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<br />
We have been a bit busy here in the B household, for a very good ( and blessed reason)....<br />
<br />
WE MOVED!!!!!<br />
<br />
Yep, We bought a new house (and Im in LOVE)<br />
<br />
We moved from our "undersized" house in the city to a perfect house just outside of the city. We love it here!! The boys have a ton of room (inside & out ) to play and run. And I finally got the kitchen I've been waiting for! Oh, and that sweet hubby of mine kinda likes his garage....a lot. ;)<br />
<br />
So since we have been busy with moving, I have sort of neglected the blog a bit. But have no fear! We are settled and were back to regular blogging! <br />
<br />
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First off, Mason will be having surgery on Wed. We tried to avoid it as long as we could, because we didnt want 2 surgeries in less than a year.... but we cant really put it off any more.<br />
<br />
Mason will have ear tubes put in, extensive hearing screening, adnioids taken out, and sinuses "worked on". We got the "ok" from the cardiologist, (his echo is good) but with some stipulations... We have to be monitored overnight inthe PICU after surgery.....ugh. Better safe than sorry I guess.<br />
<br />
This momma is worried, but not nearly as bad as with his open heart surgery....<br />
<br />
So we ask for some prayers and good thoughts on Wednesday morning for our little tough guy. We always appreciate them ;)<br />
<br />
<br />
<br />
PS<br />
<br />
Mason is standing...unassisted...This kid is amazing<br />
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<br />
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<br />
Also....<br />
for you fellow instagramers.... were mrsbandherboys (Mason crawled into his brothers bed all by himself)<br />
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<br />Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com5tag:blogger.com,1999:blog-321279206651394122.post-2281226821040955942012-06-28T14:53:00.001-07:002012-06-28T14:53:22.446-07:00Forward motion....Mason is now 14mo old. <br />
<br />
Most babies his age ( and younger) are already walking , heck, some are even running! But walking is something we have yet to accomplish. <br />
<br />
To see other (mostly younger) babies pass him by, still hurts ( but not as much as it used to..) But that little miracle never stops amazing us. We are now well on our way to walking!<br />
<br />
Mason can pull up to stand like a pro!<br />
<br />
He is now crusing along the couches like a rock STAR!<br />
<br />
He is also starting to walk using his walker!!!!! And oh how sweet those little step are. ( yes mommy cries tears of JOY!)<br />
<br />
When I start to get upset that Macy is getting passed by other babies even younger than him in gross motor skills, I remember this photo....<br />
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<br />
<br />
And remind myself that my sweet boy went through open heart surgery just 9 short months ago. <br />
<br />
Then when I look at him, remembering that they said he would never make it to birth......<br />
<br />
And now look at my miracle:<br />
<br />
He is climbing.. <br />
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<br />
Standing <br />
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AND always smiling.....<br />
<br />
So I will sit back and patently wait for our turn, when he is good and ready...<br />
<br />
PS<br />
as you can see in the climbing pic....When he is walking, Im going to have a wild one on my hands!<br />
<br />Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com6tag:blogger.com,1999:blog-321279206651394122.post-41717615400636791792012-06-22T08:23:00.000-07:002012-06-22T08:25:20.635-07:00Pool Time<div class="separator" style="clear: both; text-align: center;">
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Its that time!!<br />
<br />
POOL TIME!<br />
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We have a great pool near our house and this week we took Colby, Mason, and our niece Addy. All 3 kids loved the pool. There are 2 big pools, both with zero entry ( gradual incline into the water) and Mason loved playing in the shallow end! The kids pool is great as well, with a good sized water slide in it ( Colbys favorite since he can go down all by himself!) </div>
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There is also a lazy river ( Mason fell asleep on the raft in the lazy river) and 2 big slides in that area as well ( See pic bellow) The blue slide is a group slide so we could all go down at the same time ( Again Colbys Favorite!)</div>
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We all had a blast and cant wait to go back again next week! </div>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhm0QqtQKsYqCrEgdg1q6VNNRBHj6ZNOq_RiKEy2hwrNgGWit00i9IljBuZzZCN2quv-pgK_hUpvKmCzRytOjDZNzAJxes0nGvBOavgzuMR9RzhMjxARJAykqZ0-oyLCX3Hj5tJgYdSXRk/s1600/224955_3757832699191_468000816_n.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhm0QqtQKsYqCrEgdg1q6VNNRBHj6ZNOq_RiKEy2hwrNgGWit00i9IljBuZzZCN2quv-pgK_hUpvKmCzRytOjDZNzAJxes0nGvBOavgzuMR9RzhMjxARJAykqZ0-oyLCX3Hj5tJgYdSXRk/s320/224955_3757832699191_468000816_n.jpg" width="320" /></a>Mrs. Bhttp://www.blogger.com/profile/08673799688891667944noreply@blogger.com3