Tomorrow we meet with Mason's cardiologist team.
We have been waiting for this appointment for a long time.
We could have had this appointment done around 22wks....but they didn't think Mason would survive. So they set it for a later date....just so we wouldn't "waste" our time doing the long appointment just to have him not survive.
It make me so full of every emotion possible as we near this appointment. I feel mostly like crying. Happy tears that our little fighter has made it to 30wks and is beating the odds, and tears of fear of what the future may hold for our Mason. There as so many "ifs" and "coulds" in our life...its starting to wear on this tired mommy.
I have been looking forward to this appointment, looking forward to FINALLY knowing what can be done for his tiny heart. Then there is part of me that doesnt want tomorrow to come, for fear of more bad news. I have these fears about our appointment tomorrow... and the stress of these fears are wearing me out.
I fear....
Mason's heart wont be able to be fixed.
That they find more things wrong with him
He will need surgery right after he is born (in KC 1hr away from our home)
Cord doppler pressure will be elevated (immediate delivery)
Hygroma will cause more problems
These fears take over my thoughts all day. All I want to do is pretend everything will be just fine. Continue on with life like we never got the diagnosis that had changed our lives.
When strangers ask what Im having...I want to cry.
I answer: a little boy...but inside i am thinking .. a very sick little boy... were praying we get to keep him here on earth.
When they ask when I'm due....
I answer : May 20th...then try to ignore their stares at my very large belly & comments of twins...while i really want to say "we may deliver any day now"...
But by answering the "polite" way I avoid having to tell all the things going on with Mason... I avoid the looks of pity, and they apologies they offer. I get to pretend for a few seconds that Mason is just another "normal" baby, that he isn't having to fight for his life, or that my heart isn't breaking.
I feel life getting harder...and I'm getting weaker. I'm ready to be done "holding my breath"!
I have an extra prayer request. My 4yr old niece is going in for surgery tomorrow as well. She is having her tonsils/adenoids removed. Her mom (my sister) has also just found out that her cancer is back in uterus...even after having the cancer removed less than a year ago.
Praying for a good day tomorrow.
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Praying for Masons heart and that you have a good appointment tomorrow. Also thinking of your niece and sister
ReplyDeleteJust wanted you to know that prayers are going up and will continue to go up. I will be thinking about you tomorrow. I know how scary these appointments can be since my son's heart defect. Sending big hugs...
ReplyDeleteDeuteronomy 31:6 "Be strong. Take courage. Don't be intimidated. Don't give them a second thought because God, your God, is striding ahead of you. He's right there with you. He won't let you down; he won't leave you."
ReplyDeleteYou and your family are loved and I'm praying for you!
Prayers Prayers and more Prayers For you Mason and your entire family! I am praying He gives you strength and hope = )
ReplyDeleteI heard this song on the radio today and thought of you and your story. It's called "Arms that Hold the Universe" by 33 Miles. Praying for you. =)
ReplyDeletehttp://www.youtube.com/watch?v=HGCHecATSGs
Thinking of you. I can imagine how hard it must be when strangers ask, but I'm sure giving the polite answer is much easier. I think of you almost every day. You are in my thoughts and prayers.
ReplyDeletePraying so hard for you guys and little Mason... will be offering my Rosary today for a great appointment and awesome news! Much love and prayers, Jessica
ReplyDeleteI am praying for you and Mason and in my heart I see nothing but great news for you at the appointment. My thoughts will be with you tomorrow!
ReplyDeleteAlso sending a prayer up for your sister and niece.