Tuesday, February 21, 2012

Total Rockstar

I have come to believe that God has blessed me with a Rock Star baby.

Mason has a new chair! The wonderful people at TARC have built him a custom seat. He loves being able to sit and play with his toys , and it has improved his muscle strength as well.......


Now he can do this:

Yep, Total Rock Star.

Saturday, February 18, 2012

Prayers for Cora

This is sweet Cora:

Cora is in need of some prayers. You see, Cora just had surgery on Monday to remove her Adenoids & Tonsils. Children with down syndrome most often need this surgery done. Its a usual " run of the mill" type of thing.... But it wasn't so in Cora's case.

Cora has had some complications from her surgery. She is currently in the PICU. She is on oxygen and has been sedated. They say she has swelling that is closing her airway & aspirating.

We are asking that you keep Cora and her family in your prayers.

Thursday, February 16, 2012

Happy Valentines Day (a few days late)

Happy Valentines Day.

Boys had a great day, mommy was spoiled, and we all ate candy.....it was great.

Tuesday, February 14, 2012

Sunday, February 12, 2012

Life is messy....


Sometimes gets messy....


Before Mason was born, they said "Babies with Down syndrome cant breastfeed". We were quite discouraged that Mason wouldn't be able to breastfeed or take a bottle, due to "low tone". When he arrived 6wks early, they talked about needing a feeding tube. We were planning on taking him home with a NG tube to feed him.

Mason had other plans. A few days before we left the NICU, I asked the nurse if I could try to breastfeed him. She shrugged her shoulders and said that we could try. Well we tried, and he actually did pretty good! We got to leave the NICU, on partial breastfeeding and a bottle. Well the bottle was A LOT of work! It was taking him 30-45 min to drink 2-3oz. So I kept working on the breastfeeding. He started at 1/8th of an oz and went from there!!! He caught on quickly and became VERY efficient as well. He impressed everyone. He can transfer 8-9oz in about 15min. "Low tone" is not his problem when it comes to nursing.

Here were our helpful items

A good BOPPY
A nursing stool

and a Nursing Sash

Our next hurdle was introducing solid foods

Mason has done pretty well with solid foods so far. We brought in the speech therapist before we started so she can tell us what to do, and what not to do! She gave us great information. We were also given the best "tools" for him to start solid food.

these spoons have been amazing:

They have a long narrow bowl and are designed for poor lip closeure & tounge thrust (Mason's biggest problem )

This has been helpful in straw drinking

Bibs are always good idea!

And this sippy cup has done great also

With help from the speech therapist, lots of work, and the right tools.... Mason is doing great with solid foods now! He is now really interested in trying to feed himself as well..

I have learned that the right tools, support, and perseverance..... Mason has a bright BRIGHT future!